Big Wide World

there's been a lot of talk about god recently, and i must admit, when watching "the boy whose skin feel off" i started to consider it. aside from personal experiences, i don't think that i've ever been sadder, angrier, sympathetic, and so many more things. its a story about a man named Jonny Kennedy, who had Dystrophic Epidermolysis Bullosa (EB), which basically gives your entire body a blister because your skin tries to heal itself, so it keeps blistering and falling off-- your entire life. i can't describe the absolute horror that went through me. i won't even try to describe.

if i were to have a hero, he would be it. how can i complain about the dramas of my life, when this man lived with excruciating pain for 30 somewhat years? do you remember what one blister on your heel feels like? this was his entire body. i'm not going to get into the details, if you want to read some of the horrors of this disease, you can do that... better yet, try to watch this sad but inspiring heartfelt story of a man that despite the hard life that he was dealt, he still had a great sense of humour.

but get ready to cry like a banchee... Jonny Kennedy, i salute you. RIP.